With 7.7 million new cases of dementia diagnosed each year, it’s likely you’ve been personally affected by the disease through a family member or friend. Dementia and Alzheimer’s disease diagnoses can cause fear, denial, and grief due to the lack of understanding about how the symptoms develop. However, when public figures who we admire reveal they’re battling an illness, it often brings much-needed attention to a disease that affects millions, and relief to families grappling with the disease in their lives.
These public faces have helped to bring more awareness to dementia and Alzheimer’s by sharing their own stories. Their advocacy has helped to raise money for research, care assistance, and early detection.
In November 1994, 40th president Ronald Reagan shared his Alzheimer’s diagnosis in an open letter to his former constituents. Reagan used his prominence to bring attention to the disease, dispel the stigma that surrounds Alzheimer’s, and comfort affected families. Following his announcement, Reagan and his wife Nancy founded the Ronald and Nancy Reagan Research Institute at the Alzheimer’s Association. Together, the Reagans’ raised millions of dollars for Alzheimer’s research, and Nancy famously advocated for stem-cell research as a cure for the disease.
Sandra Day O’Connor is the first woman to serve on the Supreme Court. After 24 years, she retired from her seat in 2006 to care for her husband, John, who was battling Alzheimer’s. John passed in 2009. Nine years later, in October 2018, O’Connor announced her own dementia diagnosis. She used the announcement as an opportunity to express her decision to leave public life and enjoy time with friends and family.
Robin Williams and Gene Wilder were both beloved comic actors whose starring roles in films like Mrs. Doubtfire and Willy Wonka and the Chocolate Factory respectively made them household names for adults and children spanning generations.
A reported Parkinson’s disease diagnosis was the catalyst for Robin Williams’ suicide. However, his autopsy concluded he lived with an unusually severe case of Lewy body dementia (LBD). In a 2016 editorial in the journal Neurology, Williams’ widow, Susan Schneider Williams revealed he was having problems with paranoia, delusions, insomnia, memory, and high cortisol levels.
“Robin was losing his mind, and he was aware of it. Can you imagine the pain he felt as he experienced himself disintegrating? And not from something he would ever know the name of or understand? Neither he nor anyone could stop it—no amount of intelligence or love could hold it back.”
Following his death, Gene Wilder’s nephew explained why he decided to keep his Alzheimer’s diagnosis private. “The decision to wait until this time to disclose his condition wasn’t vanity. But more so that the countless young children that would smile or call out to him ‘there’s Willy Wonka,’ would not have to be then exposed to an adult referencing illness or trouble and causing delight to travel to worry, disappointment or confusion. He simply couldn’t bear the idea of one less smile in the world.”
In an essay for ABC News, Wilder’s widow Karen remembers the signs signaling something wasn’t right with her husband—uncharacteristically lashing out at their grandson, losing depth perception, or forgetting the name of one of his most famous films “Young Frankenstein.” She also recounts the difficulties she faced as a caregiver, recalling a time her husband fell on the patio and couldn’t get up. She got him to the pool to float him to the other side where there were steps and a railing to assist him.
Karen Wilder allowed the Alzheimer’s Association to use her husband’s Willy Wonka character in a video campaign, the “Pure Imagination Project” aimed to bring greater awareness to the disease.
Writer and actor Lauren Miller Rogen and her husband, actor Seth Rogen, founded Hilarity for Charity in 2012 to increase the awareness of Alzheimer’s disease among millennials. Inspired by Lauren’s long family history with the disease and her mother’s early on-set diagnosis at 55, the organization uses its star power to engage younger generations in the fight against the disease. Notably, their successful variety show has raised over $10 million. “Seth Rogen’s Hilarity for Charity” was released on Netflix in 2018 as an avenue to reach more millennials with popular comedians like Nick Kroll, John Mulaney, Tiffany Haddish, and The Muppets.
Journalist and member of the Kennedy Clan, Maria Shriver, has long been an advocate for Alzheimer’s research. Her father, Sargent Shriver, was diagnosed in 2003, launching over 15 years of activism from a very public face. Shriver has written a children’s book, “What’s Happening to Grandpa” aimed to help children understand what Alzheimer’s means for a loved one; she executive produced the HBO series “The Alzheimer’s Project.” Shriver founded the Women’s Alzheimer’s Movement which “…challenges and engages women, scientists, philanthropists, influencers, industry leaders, and the public at large in the fight to wipe out Alzheimer’s.”
Though there is no cure for dementia and Alzheimer’s, it is possible to live an enriching life despite the diagnosis. Familiarize yourself with the early signs of dementia. If you recognize symptoms in a loved one, encourage them to see their physician sooner than later. If you’re a caregiver, make sure you are taking care of yourself, too.
Aegis Living offers a robust memory care program for people living with dementia and Alzheimer’s. Our Life’s NeighborhoodTM program is designed to improve the quality of life and increase enjoyment for people living with memory loss. If you’re interested in learning more, call your nearest Aegis Living community to speak with one of our directors about memory care.
Respite Stays & Day Stays give family caregivers a real break—hours, days, or a few weeks—while your loved one enjoys a safe, enriching short‑term home at Aegis Living. Guests settle into a beautifully furnished private apartment and have 24/7 care staff and onsite nurses, medication management, and discreet safety technology (motion sensors, medical‑alert pendants, visitor check‑in) for peace of mind. Each day feels purposeful with chef‑prepared, all‑day dining and 200+ monthly activities—from book clubs and fitness classes to movie nights—plus full use of the community. We coordinate with your loved one’s physicians to mirror their routines and care, so the stay feels familiar. It’s also a smart trial run for senior living: meet neighbors, test services, and see what supported independence looks like—without a long‑term commitment. Choose a Respite Stay when you’re traveling or need time to recharge, when your loved one would benefit from structure, social connection, and great meals, or when you both want peace of mind while keeping options open.
Hospice & End‑of‑Life Care at Aegis Living is comfort‑first support for the final stage of life, delivered in your loved one’s private apartment by our 24/7 care team in coordination with a trusted local hospice provider you choose (or we can recommend). Together, we create a coordinated care plan that manages pain and other symptoms, oversees medications, and provides calm, dignified help with daily needs, while offering compassionate emotional support for both resident and family. Discreet safety measures and a reliable medical‑alert system bring help quickly; chef‑prepared, in‑apartment meals adapt to changing appetites. Families are guided through decisions and moments of closure so they can focus on being present in a peaceful, home‑like setting. If your loved one already lives at Aegis, they can remain in the comfort of their home, avoiding disruptive moves. Choose this level of care when curative treatment is no longer the goal and you want expert symptom control, hands‑on daily support, and a setting that protects dignity and prioritizes comfort, meaning, and time together.
Memory Care is specialized, secure support for people living with Alzheimer’s or other dementias who benefit from a calm, structured environment and round‑the‑clock expertise. At Aegis Living, that care happens in Life’s Neighborhood—an intimate, thoughtfully designed setting where 24/7 dementia‑trained caregivers and a nursing team on site seven days a week deliver personalized help with daily living, medication management, and mobility (including Hoyer lifts and two‑person transfers), while gently redirecting agitation and confusion. Days are purpose‑filled with science‑based cognitive programming, certified music therapy, and social activities; chef‑prepared meals are easy to enjoy and dining spaces and cues are designed for memory support. Discreet safety features like secured entrances, emergency pendants with fall detection, and optional motion sensors, prevent wandering and bring peace of mind, and visiting physicians and wellness professionals reduce trips off‑site. Families receive education and ongoing support. If your loved one is unsafe alone, missing medications, wandering, needs frequent cueing or hands‑on help with bathing or dressing, or thrives with a predictable routine, Memory Care offers the right level of care. For milder needs, our transitional Assisted Living can be a first step; for advancing symptoms, secured Memory Care provides the specialized, heartfelt support to help them feel calm, connected, and at home.